Quote:
Originally Posted by LMPinkereton
I read these forums daily, but rarely post. I really appreciate the feedback. As I said, I'm getting desperate.
Regretfully, I tried antidepressants for about a year. They helped (very) slightly (in that I slept better), but on the other hand I just sat around all day and didn't care about doing anything all at. So I stopped them.
Several years ago, I did the no sugar, supplements, lost 30 lbs, etc. and after 9 months, I felt worse, so I stopped that too. None of my labs showed any improvement either.
I have resigned myself to the fact that I'll never be able to do anything again. What ever I have to do to get through the day I do, even if it means staying in bed for several days in a row.
Just chimed in here in hopes of something new for the pain.
(Wish people would try to understand how this disease works, instead of my having to explain myself at every turn.)
Thanks
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I definitely understand where you're coming from. But, there is the old adage with supplement therapy - it took years to destroy your nerves, it will take at least that much time to help repair them. The medicines arent gonna cure it, at least there are some promising clinical studies that show success from the supplement therapy. In some cases, people arent taking high enough dosages of supplements but its an uncomfortable thing to kind of make yourself a human lab rat. there are a few folks in this forum who have told stories over recovery over time and I find that helpful. Doctors will either tell you nerves cant regrow or that there is no cure. I refuse to accept that. the body wants to heal.
I get very frustrated watching my entire family eat stuff like doritos, ice cream, pizza, cookies, etc. While I have my 4th 2-carb salad in 2 days. But, Something about the brutality of the the vibratory sensation of SFN that has me unwilling to take a chance. Every now and then i actually steal a potato chip chew it in my mouth and spit it out without swallowing. i actually can notice my neuro symptoms get instantly triggered from swallowing as little as 2 or 3 potato chips or a small piece of candy. Tested for diabetes and glucose intolerance and numbers are perfect.But, nerves do not like blood sugar spikes. This is true for all versions of Neuropathy, Fibromyalgia, MS, etc.