Hi Canagirl, I am sorry to hear what you are going through and hope you would find a treatment.
Are you taking any new drugs ? Is it possible that some of your new symptoms are an adverse effect ?
I tried taking Imuran for a couple of days, had many side effects and had to stop it due to an allergy reaction. 3 weeks later my skin, all over the body, still burns, as if I was burnt by the sun. In my case I know it is an allergy reaction and not the SFN since I got a rash and antihistamine alleviate it.