Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Hi, LilWeezey.
Okay, so you have an unofficial diagnosis and a doctor thought that it would be a brilliant idea to give you Prednisone? Wow.
Prednisone is not only hard to get off of, but it can cause all kinds of serious side effects. Did he explain that to you? Pred is not to be taken lightly or prescribed as though it's candy!
The other problem with Pred is that, if you don't have an official diagnosis, it makes all of the signs of MG go away, as well as make any MG tests look negative!!!
Did they even mention having a Single Fiber EMG done? Did they only do the Acetylcholine antibody test? What about the MG MuSK antibody test?
Do you have any weakness anywhere? Shortness of breath? Issues with talking or swallowing?
If I were you, I'd find a MG expert and get a second opinion before exposing the body to such a potentially harmful drug such as a steroid!
Does your double vision go away when you close one eye? MG has binocular DV and when you close one eye, it goes away.
Having MG is a big deal, and there's a lot to know about it. And a good MG expert will want to make sure that you don't have Lambert-Eaton Myasthenic Syndrome or one of the Congenital Myasthenic Syndromes (genetic disorders that steroids are not used with because they're not autoimmune).
I hope you get a more solid answer and better advice.
Annie
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