Good morning everyone, I'm new to this forum and not sure if I'm using this cite correctly. Quite frankly I'm to tired o read the instructions. For the past two years I have experienced several episodes of complete exhaustion, problems swallowing, muscle weakness beyond explanation, my head feels like it weighs 100 lbs, choking when I eat, even soft foods,constant spasms, and have no energy for several days that I can't even get out of bed. I have been seeing a Neurologist for severe migraines and was told this is my problem, never being told why I am so fatigued or being told by a Doctor that I must have a VIRUS, and there is nothing that could be done. Recently, I collapsed at work and the NEURO Dr. decided to run additional blood tests and has scheduled me for an EMG in 3 weeks. I had barium swallow to examine why I'm having problems swallowing, the Dr. told me to tip my head back slightly when I eat or drink, which does help, but not normal> and doesn't always work. The first blood test came back with a vitamin D deficiency and I as told not a big deal. I am waiting for the ArCH blood test results at this point. I have read several posts which indicate even if these tests come back negative I could still have MG. I am really frustrated. I heard one of the Drs suggest that it could be related to stress. I live in Georgia and I don't think there are any Doctor's equipped to make a proper diagnosis. Does anyone know of a good MG specialist? Growing more frustrated each day. thanks, Ella
Quote:
Originally Posted by LilWeezey
Hello, as of Tues the 3rd I was unofficially diagonsed by my neuro-opthomologist with MG. Ive been prescribed Mestinon and Prednisone to see if it elevates my symptoms.
The only symptom I have is diplopia [double vision]
I was recently discharged from Navy bootcamp for the double vision and all the navy doctors thought it was MG.
I got CTs done, MRIs done, Tessilon Test, and EMGs and everything except the EMGs came out negative [there was apparent weakness in both my arms that were tested], even the blood work. But my cilivan neuro-opthomologist said that 50% it won't show up on the blood work [they didnt tell me that at the VA]
Does anyone have diplopia and take these 2 medicines. If yes how long til its effective? I see him this coming Tuesday again. The medications have helped so might as lightening my double vision and removing the "tugging" feeling from the effected eye. And very slightly helping out my leg that has RLS/Shin Splints.
Will I develop any other symptoms?
If not MG what could possibly be going on?
Thanks in advance!
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