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Old 08-12-2015, 12:24 PM
LouLou1978 LouLou1978 is offline
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Join Date: Feb 2015
Location: UK
Posts: 153
10 yr Member
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
10 yr Member
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Hello Canagirl,

I have just come back from Neuro appointment, so thought I would share with you. Mine is same as yours non length dependant.

I have asked neuro a load of questions, he is not just a regular neuro, he actually specialises in PN and works in London and sees a lot of people with SFN.

Canagirl, I asked if it can get better, his response was yes 'it can burn out in some cases', which he has seen in some of his patients in London. I asked him what he meant by 'burn out' he says sometimes, it just goes away!

He is putting me on 5 days in hospital on steroids, he said some patients have had a good response from this. He has also putting an application for ivig for on going treatment, he said he had a woman from Gibralter, who comes over every 8 weeks who has an amazing response from IVIG.

I just thought I would share , as I thought the neuro was very positive and helpful.
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