View Single Post
Old 08-12-2015, 02:08 PM
madisongrrl's Avatar
madisongrrl madisongrrl is offline
Member
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
10 yr Member
madisongrrl madisongrrl is offline
Member
madisongrrl's Avatar
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
10 yr Member
Default

Quote:
Originally Posted by en bloc View Post
You need MORE Gabapentin then 1800. Most with severe neuropathy take up to 3000 mg a day or MORE.

I honestly don't think your SFN is from the acupuncture, because you went to get the acupuncture due to nerve pain you were ALREADY having

Your GP is not a pain specialist or neurologist. You need to see a pain mgmt doctor or get your neurologist to properly treat your pain with larger doses of Gabapentin.
en bloc,

I agree with all of these points. I was on 1800 mg it's not enough when you have significant body-wide burning. I'm on 2400 mg now with a small dose of nortriptyline and it's really not enough to function properly.


Hi Canagirl,

I'm sorry that you are going through this. Neuros also say that NLD-SFN is rare (mine did), but IMO I think it's uncommon, not rare. It seems to be under identified and easily written off as being caused by other things.

Maybe re-read my post to you from before:

http://neurotalk.psychcentral.com/post1148803-9.html

This likely didn't come from trauma. There are many of us here with the same thing and we are all searching for a cause and for a way to deal with this. You are not alone.
madisongrrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluesfan (08-12-2015), pinkynose (08-12-2015)