Originally Posted by Ella56

Good morning everyone, I'm new to this forum and not sure if I'm using this cite correctly. Quite frankly I'm to tired o read the instructions. For the past two years I have experienced several episodes of complete exhaustion, problems swallowing, muscle weakness beyond explanation, my head feels like it weighs 100 lbs, choking when I eat, even soft foods,constant spasms, and have no energy for several days that I can't even get out of bed. I have been seeing a Neurologist for severe migraines and was told this is my problem, never being told why I am so fatigued or being told by a Doctor that I must have a VIRUS, and there is nothing that could be done. Recently, I collapsed at work and the NEURO Dr. decided to run additional blood tests and has scheduled me for an EMG in 3 weeks. I had barium swallow to examine why I'm having problems swallowing, the Dr. told me to tip my head back slightly when I eat or drink, which does help, but not normal> and doesn't always work. The first blood test came back with a vitamin D deficiency and I as told not a big deal. I am waiting for the ArCH blood test results at this point. I have read several posts which indicate even if these tests come back negative I could still have MG. I am really frustrated. I heard one of the Drs suggest that it could be related to stress. I live in Georgia and I don't think there are any Doctor's equipped to make a proper diagnosis. Does anyone know of a good MG specialist? Growing more frustrated each day. thanks, Ella