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Originally Posted by AnnieB3
Before I got sick this spring, I had a long explanation for you about this, but didn't have a chance to post it. This time, it'll have to be shorter.  |
Please don't overexert yourself. I am resigned to the fact that I am going to be fighting this battle for many years.
However, I am a logical fault finder by nature.
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MDV is caused by something other than MG.
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Correct. MDV has by definition to be within the eye itself.
However the majority...99%... of the ophthalmological community seems to believe that MDV does not exist at all. That does not help.
From what I have been able to discover MDV is caused by Astigmatism in combination with High End Spherical aberrations.
Patients presenting with this problem, are
TOLD that they have blurry vision. They are told this very strongly and then scheduled for Cataract surgery. Once they have had cataract surgery, any future eye problems can and are blamed on the surgery.
Maybe because of the language difference, maybe because I am stubborn I refused to accept a DX of blurry. I come from a printing background... I know the difference between blurry/fuzzy and double images! The doctors got very upset when I would not agree with their description of what I was seeing.
Anyway, that is MDV. But, so far as I am aware, neither Astigmatism or High End Spherical aberrations, are fatigable. Both might change over years, but not over hours.
The only thing that I can think of that can tire (be fatigued) over a few hours are muscles.
Now it turns out that there are muscles within the eye. The ciliary muscles of the lens and the sphincter muscle of the pupil. These muscles are tiny, but critical in changing the focus of the eye.
So my logical way of thinking was simply that MDV added to MG of these tiny muscles could produce the exact problem that I have. Double Vision, that varies over hours. That can be improved with rest. That can be improved with Mestinon.
I am open to any other suggestions as to what other mechanisms could account for these symptoms, but sadly NO ophthalmological or MG specialist is prepared to engage with me to offer an alternative. I suggest that is because there is none.
Sorry if this sounds a bit like a rant, but it is a major problem for me. Indeed in the time it has taken me to type this my eyes have tired and the DV is worsening. Time for a rest and more Mestinon.