Hi Kate,
Welcome!

Kate, you are going through a lot and it all sounds like it may be unsettling.
I'd want more answers, too.

As for the IC, I have had some extremely painful episodes of IC. I have been able to keep them at bay by following dietary guidelines, fortunately.
I had learned about the diet at the Interstitial Cystitis Association www.ichelp.org

I will catch up with you on the PN forum.
There are also some fun threads where we share music, jokes, wildlife and more!

I hope to see you around the community!

To Our Healing,
DejaVu