(((( Wiix ))))
Sounds very uncomfortable.
I hope you can get a full evaluation soon.
Do you have an appointment scheduled with anyone -- primary care or gastroenterologist?
I feel you suffer daily/nightly.

I'd like to see you feeling better and enjoying daily life more.
I am at a loss for suggestions. Members have made suggestions in another thread, including the need for a full, updated evaluation.
Is there something holding you back from asking for more help from your doctor(s)? Lack of insurance coverage? Concern as to what a doctor may find? Something else?
Sometimes, when trying to get an appointment and/or when in an appointment, I have to very clearly state: "I need your help with this please, it cannot wait any longer." Doctors are usually compassionate. Sometimes they are very busy and/or a bit distracted. We have to be clear about our needs/concerns.
I am saddened you continue to suffer. I hope you will find adequate assistance soon.
DejaVu