Hi Canagirl, the article that still hoping has posted is the one that I was referring to too. I have seen a couple like it too. I just read it again and it says they responded to oral prednisone, I am having the prednisone infusion, so I hope this has the same , I believe is supposed to be safer.
Canagirl, I am going into hospital for 5 days on the 14th September, I will let you know how I get on and see if it helps.
I hope you can convince your neuro to let you try it. As I have mentioned before, with the non-length dependent sfn , I have read if no cause can be found they suspect an inflammatory process so it would be worth giving it a try.