Quote:
Originally Posted by DavidA
Hi northerngal,
Really good to hear from you; I think you're the 1st person I've 'met' with similarish symptoms to mine. I do hope you've found a few things to help you.
Re the Gabapentin: the cause of my P.N. is unknown after all manner of tests. I do not have pain but the neurologist thought it was worth trying, tho' it sounded like a bit of a 'long shot' (ie unlikely to ease symtoms of numbness in feet & lower legs) & it proved to be of no help. I'm currently taking Pregabalin which I think, is the 'last throw of the dice'. So far it has not eased the symptoms but the dosage is being slowly increased every 2 weeks; time will tell if it can offer any help - one lives in hope!
Over the next few weeks I'm going to check-out the site to see if anyone has had any success with supplements or TENS machines or..............anything. I know very little about P.N. - my 'coping strategy' was to try & put it to the back of my mind & get on with life. As a coping strategy it was on a par with some of Homer Simpson's really dumb ideas. 
The 1 little success I've had so far is with driving. Nowadays I drive very little but a friend has loaned me his car – a BMW 5-series – whilst he's on holiday. In his car I'm almost in a 'lying down' position - unlike my own, a Renault Scenic, where I'm very upright - & whilst it doesn't totally solve the problem of numbness whilst driving it does seem to make things easier. I wonder if you've had similar problems & found your own solution?
My very best wishes to you & everyone faced with horrible life-affecting conditions
DavidA |
I still drive my regular car, a mazda crossover, vehicle. I have not had any issues with driving. Although my feet are numb and weak , my planter flexion is ok (not as strong as it used to be, but ok) my dorsi flexion is very weak. Driving is easier than walking, due to foot drop from the weakness.
I have never taken any medication for symptoms, as I have no pain , only numbness. I am not aware of any medications for numbness--that is why I questioned yours---I was hoping it was something for the numbness.
My neuropathy is thought to possibly be immune related, but this is not a definite diagnosis....more like a "best guess" from doctors because I don't really fit any reason exactly. I have taken prednisone, ivig, plasmapherisis, and rituxin for immune modulation.