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Junior Member
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Join Date: Nov 2013
Posts: 39
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Junior Member
Join Date: Nov 2013
Posts: 39
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colectomy surgery soon and petrified
i am petrified.
i am scheduled to have a colectomy mid-October.
i had a VERY BAD reaction to anesthesia last summer, and that was anesthesia-lite...the kind you would use for a colonoscopy which most people can tolerate quite well...
this is full blown, general anesthesia...
as if that is not enough, this major surgery is excruciating with a long recovery for healthy people.
my head has not stopped hurting in 2+ years since i was hurt, and the anesthesia given to me made me worse overall and i am not even close to feeling the same since.
i have no choice. i have been hospitalized twice with severe complicated diverticulitis and i am lucky to have avoided emergency surgery...at least i get two months to worry about it...
has anyone else had a major surgery after mild traumatic brain injury with serious migraine problems?
i cannot imagine what my dysfunctional brain will be like when this is done.
2 neuropsych tests shows >1% percentile in cognitive processing speed and in memory deficits...
i have bilateral occiputal neuralgia and worsening trigeminal nerve pain...nerve ablations have helped recently, but they wear off eventually...
my eyes hurt when i move them and each day i wake up with a headache that only gets worse...
on top of that, i may need yet another surgery to decompress nerves or for a rhyzotomy or four...
there is even more to it all than just this...what a mess...
how am i going to make it through this?
oh God, help me please.
__________________
Background:
52 year old with 25+ years of problems associated with Fibromyalgia...
What happened:
while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.
Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...
unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.
i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...
Current Meds:
10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..
legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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