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Old 08-17-2015, 10:07 PM
Vowel Lady's Avatar
Vowel Lady Vowel Lady is offline
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Join Date: Aug 2006
Posts: 1,190
15 yr Member
Vowel Lady Vowel Lady is offline
Senior Member
Vowel Lady's Avatar
 
Join Date: Aug 2006
Posts: 1,190
15 yr Member
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English Dave...well, maybe I should say I'm on six meds.
I was already on Topamax for migraines when my facial nerve pain happened. But I only take 50 mgs. I never felt the Topamax helped me much.

In my compounded cream is: Gabapentin, Lidocaine and Capsaicin

By tablet, I take Baclofen and Desipramine. Desipramine is like Elavil.

So....something like five (or six) meds! I think the cream helps me a lot, as well as the Baclofen. They all do, really. I'm blessed to have found a good mixture for myself.

That first year after it happened...OMG!!!!!!!!!!!!!!! I so appreciate Burntmarshmallow and all those who helped me. Freakin hell.

After three years and this routine, I'm feeling better and have more control.
I still have unexplained crazy pain. For example, we went on a tour in a trolley car and I had a horrid episode and thought I would die. Out of freakin no where. I don't do trolley cars anymore.

If I forget my meds...I'm in trouble. If I sleep on my right side....trouble. I am very careful and NEVER forget my meds anymore.

I also now have a Occipital Neuralgia. I have a bad spot on my upper back and some pain going into my shoulders. I put a little cream there too.

I feel fortunate that these meds are helping me.

Don't give up!
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