Quote:
Originally Posted by Susanne C.
If the foot drop is interfering with walking, have you considered AFOs? ( ankle foot orthotics) I just got mine about a month ago, allard toe-offs, and the difference is amazing, I walk much faster, I don't really need a cane anymore, and I am much more "rooted" to the ground, much more stable. No more gravel sliding noises as I shuffle along either. They are cumbersome but I got used to them quickly. Anyone with muscle deterioration from PN should consider them although they are primarily used for hereditary neuropathy as that causes progressive muscle atrophy.
Driving is definitely getting harder, my legs are completely numb to the knees. I have to switch out of my braces to drive and only drive locally. My strength gives out within 15 minutes.
I guess my theme song is "comfortably numb" since my medication works pretty well for the sharp pains in my feet and legs.
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Hi Susanne C
Good to hear a little success story with your AFOs - had to look-up what they are!
This may be completely useless, as your condition is fairly different from mine, but 2 weeks ago I was seriously thinking of giving-up driving (like you, I only drove locally as numbness comes-on quickly when driving). As per my post earlier in this thread I've found by driving a car with a 'more horizontal' driving position - hope that makes sense - the numbness is lessened & more tolerable & I'm now able to drive a good deal further. Starting to-day I'm looking for a car very similar to my friend's, lent to me whilst he's been on holiday. Additionally his car is an automatic which also helps
My very best wishes
DavidA