Hi Jana,

I had another thought --

If your husband is receiving care in a health care system, there may be a "Patient Advocacy" office. The advocates listen to patients and/or to their families re: concerns about care. The advocates either intervene or contact someone else able to help you and your husband. (For instance, an advocate might tell your concerns/story to the Neurology/Neurosurgery Chair Person and they may want to see your husband for further evaluation.)

Most likely, any success with an advocate would be contingent upon your husband's willingness to attend an appointment, should someone want to see him.

With Concern,
DejaVu