Quote:
Originally Posted by en bloc
I don't think an 'occasional axonal swelling' will be enough to firm a Dx of SFN. It may be a sign that a process has started though. Axonal swelling is NOT normal, so 'something' caused it, and therefore another test 6 months down the road may reveal more important information about what is going on. Your symptoms may be new enough that the fibers aren't showing the damage normally seen with SFN...YET. Maybe Glenntaj will see your post and comment in the morning with more detail information.
Sorry, I don't know your history...How long have you experienced the burning? If more than 6-9 months, that my theory is probably not possible.
You mentioned autonomic symptoms. Can you elaborate on this? How long have these symptoms been present?
Have they considered autoimmune disease? Have you been tested for various autoimmune conditions?
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They have. I have been tested for a bunch of things, and was told to see a rheumatologist b/c of the negative bloods. My B12 was a bit low though--in the low 300's. I didn't see a rheumy b/c I knew I was seeing this neuro, and didn't want to see too many new doctors. Don't really like to go to doctors at all and so I've been basically living with this for years, but managing with modifications and Lyrica does help. I was wondering tho if it's possibly causing my joint pain and swelling in my hands.
Nope...this has been going on for years. I actually had to wait a couple years to see this doctor...and he was so confident! I've been managing well, until my feet got worse. Honestly, if someone could fix them, things would be so much easier.
I do have back problems from an accident and for years I thought my back was causing this pain, BUT I actually did suspect PN a while ago. But I have back problems so live life daily in pain...constant pain, but I thought my feet were coming from my back before I saw this doctor.