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Old 08-20-2015, 01:54 PM
sharonhartley50 sharonhartley50 is offline
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Join Date: Jul 2015
Posts: 4
8 yr Member
sharonhartley50 sharonhartley50 is offline
New Member
 
Join Date: Jul 2015
Posts: 4
8 yr Member
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So I told you I'd give you an update after our MRI and follow up.
Well, she does not have Dandy Walker Syndrome any longer she out grew it so the neurosurgeon said. But they were looking for Arnold Chiaria malformation due to her symptoms. Well her cerebellar tonsils are oblongated and have gone through the hole in the skull where the spinal cord comes through to the brain. I can't remember their length at this moment. She has scoliosis and many other of the symptoms that go hand in hand with CM but the neuro said I'm not diagnosing her with that. He suggested we go back to the neurologist we had seen and that he would send his findings over to him.
The neurologist put her on amatriptyline( spelling) to be taken at night before bed. Insomnia is another symptom of CM as well as bladder control which she has problems with peeing, sometimes 40 times a day.
She does have straight hydrocephalus but now it's not caused by a dandy Walker cyst, so we're back to finding out if she does now have Chiaria Malformation and finding treatment for that.


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