Mary,

Just trying to help and don't know or remember everyone's history. I didn't see mention of your having seen four docs so could not have possibly known that. New Posters have not always had adequate work-up. I often ask. I asked questions because it sounds terrible that you have a non-healed broken foot and that presents some real challenges. I would expect that hurts like Hell. Obviously it is easier to recover from CRPS with the pain trigger removed. That is not to say it can't get better even with ongoing issues. I have a really jacked up foot with 3 surgeries, a nerve injury and a benign tumor that had to removed and had 2 rounds of radiation to the sole. In spite of all that I am making progress!

Catching it early does make a difference and most people improve over time. Hopefully the ketamine will get you on track to healing. There is much in the literature about it reducing or reversing wind-up phenomenon.

Whether insurance covers is up to each individual carrier and policy AND whether a doc files with insurance for it. Some don't, but you could do it yourself if not. You could maybe look into the two ketamine docs I sent you in DC to see if they file. My insurance has approved covering the infusions though I have a $300 co-pay till I meet deductible. That info is all posted on my ketamine thread.

I am on a United policy. Infusion Procedure codes they cover for me are 96413, 96415, 96374.

With all your autoimmune issues concurrent you might consider asking about IVIG. There is a subset of CRPS who form autoimmune antibodies to adrenergic receptors on their nerves. These people responded well to IVIG in a recent study. Have you tried or considered systemic steroids? Prednisone 10mg 3xdaily for ten days for acute CRPS. This can help knock down swelling and inflammation and supress that hyper immune system. Systemic cortisone does not imperil tendons/ligaments that I know of.

Any talk of prolotherapy on the tendons? Just throwing that out there. Never had it so can't personally recommend...

Sorry you are going through so much. I hope you feel better soon.