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Old 08-21-2015, 08:35 PM
northerngal northerngal is offline
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Join Date: Feb 2011
Posts: 179
10 yr Member
northerngal northerngal is offline
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Join Date: Feb 2011
Posts: 179
10 yr Member
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Quote:
Originally Posted by v5118lKftfk View Post
Big Thanks Mrs. D. Your post is very helpful. (as always)

Since you are so involved with Neurotalk, have you seen any patterns?

Of course, selfishly, I am curious about what patterns you see with chemo neuropathy regeneration.

.... but for other readers / types have you seen patterns as well ?

Perhaps others are also caught in my dilemma ....

At some point, it will be "healthier" for me to switch mentality from spending lots of time in researching / implementing therapeutic doses of things I wouldn't normally take long term to support regeneration, to instead accepting I am most likely near the best I will ever be, learning how to live with this level, and trying to refocus my energies to living fully with where I am.

(Right now researching, trying, testing, visiting doctors is lots of time, work, resources).

Of course, I will always be hopeful and open to regeneration, but I want to be honest with myself as well.

With Chemo neuropathy, I have often heard one only have a limited amount of time (but haven't heard any guidelines to how long this is).

I find this very stressful. I feel like I am in a game show, racing a time clock and have to figure out things before the buzzer goes off with little information. If I don't get the answers right in a limited time, then my penalty is that I am stuck with lifelong debilitation.

.... hope this isn't hijacking this thread .... I suspect this line of thinking is probably typical, very relevant to the thread topic and may help others as well.


Any thoughts ??
I'm not at the point where I am able to accept that the neuropathy wont get better and to just accept it either.
I live life to the fullest I can, but still wish for my "old legs" back.
I don't think we need to give up hope, researching,trying new things or our time on here to enjoy life with the nerve damage--we just need to find a balance that works for us. For me reading and communicating here keeps me from discussing it with my friends and family.
The hope of new treatments is what keeps me going. I like to think there is going to be a method to regenerate nerves one day soon that focuses on regeneration no matter caused the nerve damage.

As for the chemo PN, I have seen two people I know recover from it, maybe not 100% but enough so it is not affecting them very much.
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"Thanks for this!" says:
DejaVu (08-23-2015), Lukesmom (08-22-2015), mrsD (08-22-2015), pinkynose (08-23-2015), v5118lKftfk (08-22-2015)