"Didn't want to cut you off because you said a lot of helpful things, bit I wanted you to see my response"
Grr....unfortunately, my tablet cut off 1/4 of what I said. ....plus I was using voice speak which messed up 1/2 of what I DID say.....grr
Anyway my main beef, so to speak, was my brother judging what I did do over a.period of 5 days......with a guest...
Granted it was family but still.....you want to keep your house somewhat presentable.....
Since I started my new med, Mexilitine, which is essentially an oral form of Lidocaine, I've had VAST improvement!!! I'm so happy!!! My daily pain, except I've had some outside medical issues exacerbating my symptoms, has been down to a 3-4 and sometimes a 5 level daily pain!!! HUGE improvement from an 7-9 daily average!!
And I've told him this, he'd been drinking some toi, but thought to bring onthis "intervention " type style of expressing concerns about my activity level......but never asked what my doctor and I have discussed as far as recent plans or activity limitations. And when I tried to explain it he turned it around to me "Not Accepting" my "Situation" as he so ineloquently put it.....
And seriously WOULDN'T understand that I DO know my limitations and conditions EXTREMELY well.....and wouldn't do ANYTHING to set back the progress I've made!! THAT was the issue I couldn't get across in my initial post!
That because I'm the "kid sister" I wouldn't or couldn't understand the FULL ramifications of MY condition!! I didn't explain it well because I got caught up in trying to explain the "back story" of the catalyst situation!
Plus have since asserted myself AND my KNOWLEDGE I f what !""I""! have endured since, and the most I can learn about
CRPS!!!
Hope he's realized I'm NOT a child needing his guiding light during my battle...or that it's the ONLY thing that's keeping me alive!!
I thinkvit was ore guilt on his side seeing how difficult things have been for me, and the fact he hasn't been here to help me since our father passed away a bour 1yr before I was diagnosed!!
So....I will apologize for the incomplete DRAMA!
And thanks Lit Love!! Your suggestions are awesome!