Hi i have Chiari plus a bunch of other diagnosis and sypmtoms. I was diagnosed in 2010 and had surgery two weeks after being diagnosed. Now i am not going to talk bad about NS in general but i was really let down when i started having problems and the NS that did my surgery did two things: He refused to see me and told me i was cured - he also told my employer at that time that i was cured. now i know this is not a correct fact that just because you have surgery everything is fixed. i understand that symptoms i had before would most likely still be a factor what i wasn't told was once the pressure area was removed i could get further problems as a result of my brain stem being compressed for so long. Any way i have had to start over several times with new PC's i was given another MRI i now have white matter on my brain and also the Tech had no training in Chiari as to whether the bovine was holding up i laid on that mri machine for two hours and the whole time i was flopping like a fish out of water ( this has never happened to me before during an MRI) i told the tech that it had never happened before. I am getting really fed up with Doctors i am now unable to work due to a multitude of issues that hinder my daily routine that i had before. every new doctor i ask to be given a referral to a chiari specialist. and i am told i don't need one. if i try to contact one on my own i am told i need a referral from my doctor. i am in pain everyday a level 3 is daily but there are a lot of times when i am at an 8 and they refuse to give me any pain meds to help me deal with this. I am so frustrated that Doctors don't know much about this condition and that i can't get the help or proper treatment that i need. it is hard enough to get insurance. But plain and simple I Need Help From Doctors I have Been fighting this for over 10 years i have been ridiculed told i have mental problems all to find out that i have a condition that is hindering my life. I am not changing doctors by the way they are leaving the practice so i have no choice but to see another one. I don't know if there are doctors on this site or not but i need help.