[QUOTE=madisongrrl;1165910]....and I sent a message to my Primary asking for a referral to pain management. This was Neurology's (UW teaching hospital) recommendation to me last winter. I feel a little defeated by this, but it's time to get some quality back into my life. As nice as my primary is, I want to smack her when she asks, "Do you have numbness and tingling?". Um, yeah...and them some, sister. She means well, I think.

I've been a constant flair cycle with head to toe burning, sandpaper feelings on my face, arms, back and butt. I have facial pain that is getting to be unbearable. The last few days I've been having breathing problems again, much like I did when this awful disease started. My breathing sounds like an 80 year old woman who has COPD.

Small fiber neuropathy sucks!!!! Sorry for the vent, but I'm feeling oh so terrible. Any advice or personal stories about dealing with pain management doctors is much appreciated.

Sorry to hear your in so much pain madinsongrrl. I feel exactly the way you do. I have been in a constant flair since Sat (sigh) with buzzing and burning from my scalp to my stinging, burning toes. I do not have any breathing problems. I do not have any numbness. My BP is low 80/50 sometimes, but I always had normal-low BP..I get light headed alot lately, even when my BP is ok. (I have a BP monitor at home). Sometimes I get nervous and hope my low BP is not related to the N! Yes sfn Neuropathy sucks!!!!! Do you have any other medical problems besides SFN?
Good luck with your pain mngment Doc. I hope they find something that will relieve your pain. I'm stuck on 300 mgs Lyrica...