Quote:
Originally Posted by canagirl
I recently found another forum on neuropathy. I have searched before but never found anything. It made me even more depressed. I didn't find any stories of improvement.
There were so many posters that claimed sfn and yet had difficulty with balance and walking and said they were housebound etc.
I've been telling myself that the one " good" thing about sfn is that I should be able to continue to be able to function relatively normal. I'm so sad to hear this is not the case.
With my non stop twitching and vibrating I think i have motor involvement but my emg on lower arm and lower leg didn't pick that up. Just carpal tunnel.
What are your thoughts?
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I basically agree with your assessment of the situation. Very few if any really make that comeback but many still feed off that hope. I have completely gotten over that notion. However in the area of palliative care I've made some real progress. Mostly because my doc depends on my research more than his limited knowledge and he's really been helpful with scripts for all the stuff I've discovered and some of it is really helpful. So that's where I do my working and hoping.