Hi all,

I outlined my story in a previous post but I have been suffering body wide peripheral neuropathy symptoms after an acute attack of pn for 6 months now with no real improvement (worse if anything). I have my good days and bad days both physically and mentally but I am fully aware that stress and despair definitely make my symptoms worse. It is for this reason (and also to not worry my beautiful fiance) that I try to keep a positive outlook that my situation may improve. However last night I gave in to the fear and anxiety yet again and broke down in tears. We had, had a busy week moving apartments and I was physically straining myself a lot more than I normally would. Despite this my symptoms were as good as they had ever been during this whole nightmare. After a week of exerting myself and still feeling pretty good I started to get a little bit of hope creeping in that I was getting better. However last night after a long day I was doing the dishes and had this intense wave of pain flood my feet and legs. My body broke out into bodywide tingling again. I just felt so dejected that I fell apart and cried for hours. I was beside myself and my fiance was distressed as well because she couldn't calm me down. During the night as my mood got worse my symptom followed and it was a very long evening.

I know from past experience that if I hold it together and distract myself with another task that these flair ups are denied an emotional response and are not quite as bad. However it's when these symptoms are at their worst that I really struggle to fight back the negative emotion. What do you guys do out there to cope when you are at your worst? Also is it typical to have your symptoms wax and wane for almost no apparent reason? I have been on my feet all week with little symptoms, and today they both feel like they have been stabbed to death and have muscle twitching all over my body.

Thanks in advance

Tim