it makes me so sad when i hear of another child with RSD. it makes me feel even worse when a desperate parent is pleading for help. there is NOTHING worse than feeling helpless when your child is suffering. i have a child with disabilities, but nothing like RSD.

you have found a good support group here. i live in ILL so i don't know anything about PA. However, there is a respite program available thru our Developmental Services Center. i don't know if that is nationwide or just something here. BUT, i receive so many hours of respite allowance per month for my son. i can pay a caregiver or they can send out one of theirs to care for my son for a few hours so i can get some relief. even if i stay in the house.

you can also try easter seals. i have never dealt with them personally, but many of my friends who have children with disabilities have told me to contact them for help.

also, there are companies that make anonymous donations for equipment - wheelchairs, ramps, machines, therapy stuff. you should check with like a hospital PR person or a therapy clinic. just don't be afraid to ask.

i am sorry i don't have any specific answers and i'm so sorry for all you are going thru. i will keep you in my prayers!

angie