Hi Cal,

Welcome to NeuroTalk.

Your symptoms/signs sound very frustrating and quite limiting.

EMGs can look normal, especially in the beginning of a condition.
Interesting your CPK was elevated, even if slightly.

As for lack of muscle wasting, there are conditions which are considered "non-dystrophic." (no muscle wasting.)

Any chance your neurologist will do any DNA testing to see if he can identify any neuromuscular disorder?

The neurology group I see now often does DNA testing before doing muscle biopsies, if muscle biopsies are done at all.

Any peripheral neuropathy involved?

I have similar symptoms, yet I have had PN for 30 years.
In addition to distal weakness and muscle stiffness/cramping, I have muscle stiffness/cramping (extremely severe throughout my whole body).
I am undergoing DNA testing to confirm an additional neuromuscular diagnosis.

I hope your doctor can help you.

Warmly,
DejaVu