Hi Cal,
Welcome to NeuroTalk.
Your symptoms/signs sound very frustrating and quite limiting.
EMGs can look normal, especially in the beginning of a condition.
Interesting your CPK was elevated, even if slightly.
As for lack of muscle wasting, there are conditions which are considered "non-dystrophic." (no muscle wasting.)
Any chance your neurologist will do any DNA testing to see if he can identify any neuromuscular disorder?
The neurology group I see now often does DNA testing before doing muscle biopsies, if muscle biopsies are done at all.
Any peripheral neuropathy involved?
I have similar symptoms, yet I have had PN for 30 years.
In addition to distal weakness and muscle stiffness/cramping, I have muscle stiffness/cramping (extremely severe throughout my whole body).
I am undergoing DNA testing to confirm an additional neuromuscular diagnosis.
I hope your doctor can help you.
Warmly,
DejaVu