Sorry for my confusing typing and poor grammar. Kids are doing the karaoke machine right now I am having sensory overload.

Today I went to the local neurologist who sent me to the big city docs because he couldn't figure out what was wrong with me. I liked him especially because he knew something was definitely very wrong but didn't know what it was vs some horror stories of people having been told they had anxiety issues.

I went to him because I need someone close by for pain management and also because now that we know what it is, I don't think I need to travel every few months for an examination unless I have an extreme relapse. Besides the fact that even the top neurologists can't figure out what the cause is...

He asked why no one as tried IVIG. I told him that the doctors I asked about it said there are risks and because I don't have concrete findings of autoimmunity besides high ANA, and borderline lip biopsy.

My neuromusular dr that I settled with does not give me the option for IVIG. He thinks I am "too healthy" to mess with despite my misery. He also thinks there is still a chance for spontaneous recovery or a major lessening of symptoms.


He asked if I mind if he reviews all of my paper work and notes to which I said "Mind? Please do!!!
He is going to do some research and work to try to push my insurance for IVIG 4 day infusion and that he absolutely loves the treatment and has had good results from it. He tells me the side effects are low. I explained to him that my daughters are having the same vascular rash and that they all appeared with in weeks of each other. He said that doesn't rule out autoimmune problems and that something could have triggered all of us. I get that, but my husband does not have my genes and he has been having mild symptoms as well.

Interesting and a lot to think about.
What would you do?

Open to any and all thoughts on this.