Quote:
Originally Posted by icelander
I avoid specialists as a general rule and I'm better off for it IMO. My GP has been better than all of them put together. So no, I've seen a urologist to consider options and that's all. That's all I'll likely do as the urologist was a rare exception and was open and honest IMO. He basically said if it's a neurogenic bladder then there isn't much to be done other than self catheter. He told me he'd advise strongly against the permanent ones.
I seem to be still hanging in with the digestive issues by eating a basically raw food diet with lots of OG sprout salads. Constipation is still intermittent but thank you for the suggestions. I'll check them out and present them to my GP for consideration.
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You may consider reading up on diets specifically for gastroparesis (delayed emptying), which is the GI dysfunction most common to occur with autonomic neuropathy. As they urge patients to avoid raw veggies, fruit, salads, etc because they are extremely hard to digest in the raw state...same with other raw foods in some cases. Also with gastroparesis, fiber doesn't usually get absorbed properly (as other nutrients too), so maybe that's why you don't see any benefit of it, and still have the constipation. Just a thought or two, to help you get on track to feeling better. Lots of good info out there for life-style and especially diet modifications to help in this area of GI autonomic problems...without having to see a specialist.
You are correct that neruogenic bladder is difficult to treat, but other autonomic conditions (affecting BP, heart rate, GI) have many treatment options.