Hi metournear

Sorry to hear of your ongoing problems with treatment.
Is there any kind of Patient Advocacy Service in your area who can assist you with representation to the medical system? Or maybe you can contact on-line a Chiari support organization that may be able to give you info on who/where to go for help in your area.

I've added here a link to the National Institute of Neurological Disorders and Stroke fact sheet on Chiari. At the bottom of the page are links to organizations in the US if that's where you're located.

http://www.ninds.nih.gov/disorders/c...ail_chiari.htm

All the best for getting the help you need.