Quote:
Originally Posted by Issi 8
Hi everyone, I have just joined this forum, I live in New Zealand and have some questions I hope you can help me with. I have been diagnosed now for 10 years and back then, the neurologist told me I would be disabled in 10 years, well I am not, and I lead a normal life. I am on drugs of course, ropinerole 4mg x 3 times a day, sinemet 100mg/25 x 3 times a day and entacapone 200mg x 3 times a day, reasonably low doses. Have been on sinemet for 6 years. I am thinking now I could be misdiagnosed? or have a mild case of PD? At my last visit to my neurologist, I asked him about coming off my drugs and he thought I could try if I wanted to. But, I need more information and support to do this!!
So, I would like to know if there is anyone out there who has come off all their PD drugs and how they did it. Has anyone else got a mild case of PD? or does anyone think they have been misdiagnosed??
It is actually quite scary, the thought of coming of drugs I seem to have been relying on for years. But, do I come off them or stay on them???
Any help or suggestions on this would be great, thank you.
Janette
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Hi Janette
I agree entirely with the slowest possible/one at a time regime. I would also add be aware it takes months to settle and you could have a rough time. The dilemma, as with all adjustments, is how long to stick at it before deciding yes/no.
Would you,if you don't mind, explain the circumstances that lead to your diagnosis ? E.g. in my case it was years of chronic stress..
I do wish you well and understand both your reasons and concerns.
Nigel