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Old 09-23-2006, 10:32 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Anne Frobert from sister thread

Hello Z.Flower, Hi Kathy, Good afternoon Rick, Salut Karine,

Back home after two days of "personal experiments" I will soon tell you about.
I have read all posts here very quickly, will now read the ones on our french mailing-list and prepare you a "review" of them all.

Remember we are not adpets, believers, sellers or magicians, just PwP's or friends trying to understand some mechanisms of an effect which is new to us but already known by few others.
Sensitive-motor loops are obviously involved in this effect and we may wonder if PD, at least in some of its symptoms and mechanisms, is not linked with disturbances of sensitory part of these loops instead of motor initiation one.

Why? Because if bands or scarf or whatever has been used for sensory stimulation of skin in its deeper part may retablish movements in PD, then motor initiation is functionnally disturbed but not impaired by loss of neurons and their dopamine as traditionnally written.....

Said in other terms, the hypothesis is the following one:Would motor symptoms be a functional consequence and not an organic cause in PD ??
(Shout at me if my words are not easy enough for everybody to understand )

Or both???
Insufficiency of neurons (demonstrated) AND functional insufficiency of remaining ones,
NOT (or not only) because their number is reduced
but because they are sick of (..) and/or functionnally (but with possible reversion) disabled??

Write more soon,
Anne.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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