|
Member
|
|
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
|
|
Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
Hello dancinglady :)
 I have severe small fiber neuropathy and the skin biopsy showed NO A or C Fibers are left in my feet......0....zero.....nada.
I was dx's Sept 2013 and yes it has been a journey in pain. I was stubborn and didn't go to the pain mgmt. dr until last Sept/Oct even though I had 3 dr's telling me that was what I needed. Didn't want to go to a 'pill mill' as I had seen on TV.
Well they are not all pill mills as I have learned with very caring and helpful dr's and staff. Not sure if you use PM or not. Due to the death of my husband I haven't been able to read up on folks and their conditions.
Using BuTrans Transdermal pain patches that are 20 mcg/hr for 7 days and oxycodone 10-325 I manage. Every now and then I ask my PCP for some 20 mg prednisone as it seems to help but is not very good for you.
We are here when the sun comes up every morning and goes down every evening. What we decide to do during that time is up to each of us. I choose to look at all the wonders around me that God has given us. Sunshine, flowers, trees, birds, smiling and laughing children that I hear outside playing. It's what you see and feel that can make a difference.
Do I go to bed crying some nights ? Does the pain wake me up in my feet and hands ? Do I have to stay in bed for days because I can't walk because my feet hurt so damn bad ? Yep to all of those but yet I keep going.
I do not want to be defined by my disease or my pain.
My mind is crazy right now and I hope I'm making sense to you but this is a place for people that are ok and managing and for people just starting this journey and need caring guidance and love.
And no not everyone leaves this site when they are better. I'm on paxil 40 mg a day and gabapentin 1800 mg a day. Along with the patch and oxycodone I get by. Is it perfect ?....no...never going to be but it's the best I can do at the present. May have to change meds in the future who knows but I'm willing to stay here and keep trying for myself. FOR MYSELF and no one else. Because I matter.....I'm important to this world that doesn't see my pain.
Hope some of this helps.
Debi from Georgia
|