Quote:
Originally Posted by vintagewine
Dear Indigo,
I am struggling with similar issues as you about finding a meaningful life, in my present physical condition, which has also affected me emotionally and spiritually .
It's hard to sometimes think clearly being in such chronic pain.
It distracts and clouds the senses .
I am still going through the mourning process of losing my life as I once knew it . Acceptance seems to be my most difficult for me to resolve.
Have you gone through this process yourself?
Meanwhile I still try to help my friends and family when they need some support or advice or other perspective.
For me, it's very important to help others in any way I can.
 Vintagewine
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Thanks for your reply.
I have no kind of acceptance with what's happened to me. I'm in the raging anger/denial stage. The illness and the seriously aggravating factor of incredibly stupid health professionals has got me all fired up. I spent the first 2 months talking to a GP who told me I was putting it on and who yelled at me because of the way I was moving.( I have a neurological disorder as well as a pain disorder). It kind of set the tone for much of the last 2.5 years and my encounters with the health system. That's not to say I haven't had some fantastic people as well. Many medical people have been great but the ones who held me up, especially initially when fast intervention may have meant I would have a better outcome..,....
I don't spend my days fuming, fry's your nerves, but I do know I have some anger simmering away underneath. I agree it's important to be there for your friends and to contribute and look outwards. Severe pain does do a lot to pull you inside. So I make small gifts, text and phone friends and family checking in on how they are.
Can't write more. Hands don't work very well. Being assessed this week for voice activation.
Thanks everyone for your thoughts. Will maybe write more later.