Quote:
Originally Posted by ConfusedpossibleTOS
Hello all;
Thanks for having this site...
My story sound pretty similar i'm sure
I believe everything started when I my first child which I might add was 10 1/2 pounds natural, or when had a car accident? During my pregnancy first and second I would pass out. To make a long story shorted I have had chronic pain neck,arms,tingling,numbness,heaviness,shoulders,ba ck,chest. With extreme weakness bilateral but most on left side. My blood pressure now is around 20 off on left side. Subclavian is believed to be the problem? But now say possible TOs, I do have Mitral regurg and diastolic dysfunction as well as neurogenic syncope. I get really bad chest pain that mimicks a heart attack. I get sob , diaphoretic and my heart rate drops
to where i am about to pass out.
I have proven Tilt test
failed Cardiac stress test
neg cardiac cath
stenosis in disks T area (not sure don't have results now)MRI 2012-in back and athritis
bulging disks in neck 2012
urinary incontinence
Possibe dysautonomia & Orthostatic intolerance
Fibro
slight asthma? Although get very short of breath
Heat intolerance
Flushing face
Swelling in ankles
and neck get s real puffy and can leave fingerprints if touched
Basically a mess
On blood pressure med & for small vessel disease
my treatment is complicated due to the fact of the blood pressure differences
Does anyone on here also have the syncopal episodes, extreme chest pain and blood pressure difference???
Thanks for any help.....
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Hello,
It sounds like you have a few things going on.
Has Dr mentioned getting a new MRI to check the stenosis & bulges?
Often the best way to find out if it is TOS , is to get all other possibilities ruled out.
The failed cardiac test and the spine factors need to be looked at more regarding a yes or no on TOS.
Usually for most with TOS, the heart /cardio tests out as OK, because it is the muscle spasms creating the problems & symptoms , not the actual heart..
You can read more on our TOS forum, you'll find a few posts where some did go to ER thinking it was HA , but it was not, in their case. all was fine.
I almost thought I was having HA for a short time at my worst sx, but it was the inter coastal muscles in my ribs, they were in severe spasm as well as nearly my whole upper body at the time...
http://neurotalk.psychcentral.com/forum24.html
check the sticky threads too.