Thank you so much to everyone above that has reached out and given support and advice..

Just to touch on a few questions and statements people made.

As far as being exposed to chemicals I am not sure at all, I have travelled to thailand 2 times and both times ended up with what I thought was food poisoning and was throwing up for days..

I also got sick whilst in America and had dizzy spells and stomach issues after being bitten by what I feel was bed bugs.. But don't know if anything I have experienced overseas has attributed my symptoms.

Question for kiwi about kennedys disease, I just rang my mum and she said no one male she knows has ever been diagnosed with any neurological disorder not her brother or her mums brother... Does that mean it's a definite no? ..I also have a normal CPK blood test which I hear is usually high in Kennedys disease. My concern is my and proximal weakness and gynecomastia which are both kennedys symptoms.

My neurologist has dismissed me after seeing me for year and saying he can't diagnose it and things it's not neurological..

Rheumatologist also couldn't find anything..

Endocrinologist the same..


So do I go get even more opinions again? Anyone on here from Melbourne Australia? That knows good gp's and specialists?