I heard back from the Mount Sinai environmental team. They cannot figure it out.
That was my last hope from the medical world.

The newest complaints are from my little one (who is also getting the vascular rash from the sun). She said her foot felt "tingly, pokey, and hurt". It went away. Now her thigh muscle is hurting.Her skin is looking even more transparent and veins more prominent.

My oldest who has had more symptoms is also having the skin changes and vascular rash. Her newest incident was when she got home from school last week. Her feet were numb and burning. I told her to take her shoes off and put her feet up and they returned to normal. They were ok all weekend and thankfully her symptoms are intermittent and she is basically ok.
My husband had 2 more occurrences of random tingling in legs and numb heels, some brain fog, noise sensitivity.

Me .....well most of you know about me. For some reason I am severely affected with autonomic neuropathy, pain, weakness, shakiness, etc. I have some days better than others. The pain comes in bursts during the day but I can definitely live my life now in a modified way. The nights can be terribly painful. Once or twice a week I get a good solid nights sleep and a reprieve, but most nights are gross.

The only clue I have to this is that 3 of us our having a neurological vascular issue. So, it isn't just me coming down with an autoimmune disease. There is some exposure that happened or is happening to us. Maybe I have something autoimmune underlying which is why it has affected me so badly, but there is definitely something else.

I am almost certain it isn't lyme at this point. Too coincidental that my children and I all began the rash with in the same 2 months.

We threw out our water cooler and got a brand new one in case it was harboring bacteria. (thanks to Mrs. D- who mentioned drinking water)
We checked some swabs of dust for mold and they came up negative. I know how tricky mold is so it isn't ruled out.