Hi Erin,

Yes I have run into the same sort of problems. Blood tests are negative, Neuros therefore say it isn't Myasthenia, but accept that there is some sort of a neuromuscular problem, but they don't know what it is, but it is not their speciality (Myasthenia) so back to the local GP.

Mestinon helps but I do have to keep increasing the dosage, which is a worry, since it says to me that the underlying problem is getting worse.

Breathing was a problem through the warm summer months, is better now.

But the Mestinon rollercoaster must be common to many people. Relief for a few hours, then just when you think you feel "normal" again, it tapers off and back in the same mess, then another dose and around we go again.

Take care and feel free to ask any questions that you have... someone here will probably have been there before.

Julie