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Originally Posted by Tb12
Thank you so much to everyone above that has reached out and given support and advice..
Just to touch on a few questions and statements people made.
As far as being exposed to chemicals I am not sure at all, I have travelled to thailand 2 times and both times ended up with what I thought was food poisoning and was throwing up for days..
I also got sick whilst in America and had dizzy spells and stomach issues after being bitten by what I feel was bed bugs.. But don't know if anything I have experienced overseas has attributed my symptoms.
Question for kiwi about kennedys disease, I just rang my mum and she said no one male she knows has ever been diagnosed with any neurological disorder not her brother or her mums brother... Does that mean it's a definite no? ..I also have a normal CPK blood test which I hear is usually high in Kennedys disease. My concern is my and proximal weakness and gynecomastia which are both kennedys symptoms.
My neurologist has dismissed me after seeing me for year and saying he can't diagnose it and things it's not neurological..
Rheumatologist also couldn't find anything..
Endocrinologist the same..
So do I go get even more opinions again? Anyone on here from Melbourne Australia? That knows good gp's and specialists?
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Hi TB12,
There is quite a bit of controversy about Lyme Disease here in the US as well and there are many tick born illnesses besides Lyme.
The fact that you were in the states and got bit by something would suggest that at minimum your docs need to test for tick born illnesses.
I am sorry for what you are going through. I got Lyme Disease in my late 30's but it wasn't dx'ed until yrs later.
Here is some info from top docs in the US, pertaining to Lyme Disease, etc.
Dr Richard Horowitz
http://www.cangetbetter.com/
Dr Joseph Burrascano
http://danielcameronmd.com/lyme-conv...on-burrascano/
http://www.google.com/url?sa=t&rct=j...xfusFn8eTgx95g
My feeling about tick borne illnesses, especially Lyme Disease is, a month of doxycline is SO inexpensive and after a couple weeks on it, you will know if it is alleviating your symptoms or not. The fact that docs get their dander up about treating tick born diseases is just beyond ludicrous.
Also, there are, at least 300 strains of Bb, the bacteria that cause Lyme and that is why the symptoms are SO diverse, it depends on what strain you get.
Dr Horowitz's book is a wealth of knowledge...he is a brilliant guy who has fought the medical establishment here in the states because he knows the widespread damage that tick born illnesses can bring.
I am not saying you have a tick born illness but it certainly is something to investigate. I went yrs, to plenty of docs before anyone figured out what I had.
Thank God I had a solid work history and none of my bosses thought I was nuts or just making it up, they all saw me slowly descend into severe illness and were supportive of me. This was many yrs ago however, they know much more now.
You can order Dr Horowitz's book on Amazon and even get a used one to save costs.
I wish you well...I know how frustrating it can be to seek out treatment for a seemingly inexplicable set of systems. Honestly, I thought...well maybe I am just having a nervous breakdown and all these crazy symptoms are in my head yet deep down I guess I knew that sudden onset migraines, unbearable light and sound sensitivity, diverse joint pains, insomnia, neuropathy, etc could not all be in my head.
My best TB12.....ask me anything you want....am happy to help.
Diandra