Quote:
Originally Posted by drpdhmr
I had a VAT thymectomy in January 2014 and saw some improvement after the surgery, but a month later symptoms were back and I even fell down some steps when my legs gave out.
It wasn't until around May I started to feel better and by June I was off IVIg treatment that I was getting every two weeks. Now almost two years after my surgery I'm off all Mestinon and am tapering down from a high of 60 mg daily of Prednisone to 55 mg every other day.
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Thanks so much for your reply. I am so worried. Need to get her to the neurologist, but wanted some reassurance.
I don't understand why there is an immediate improvement and then things get really bad before getting better again. It's like a roller coaster.