OK, I thought this forum was more active, but I will update in case my journey may help someone reading. If anyone can offer me any knowledge, please add your thoughts.
I had my appointment with my GP yesterday. He really is an easy doctor to talk to, I am grateful for that. So, I explained to him I was having breathing problems. I asked him if I might have MG. He said he was uncertain, he didn't feel I would have been 30 years undiagnosed. He listened to me as I explained many of my symptoms. Muscle weakness and all the obvious ones. Also how I have always felt like my head could drop off. How I could never sing nicely like I used to. How people always made comments on why I don't smile, or I frown too much.
He said he would investigate. YAY. So, in Australia, GPs are only able to test the AChR antibody. You need a neurologist or other specialist to request the other tests.
He listened to my lungs which were clear. He then checked my oxygen saturation using a thing he clipped to my finger. He did that several times, then he said "you are going to hospital". I was low. He hooked me up to an oxygen tank and called an ambulance. I stayed on oxygen in hospital for several hours, I felt better. They unhooked me, and monitored me, finally as I had displayed good blood oxygen levels, and no longer fighting to breathe, they sent me home around 10pm last night. The doctor also did the vital bloods, and they came back good. Last night is the first time in so long that I slept through the night. I don't appear to have any breathing problems today. Would just receiving oxygen for 4 or so hours reset things in my body? Of course I have not tried exerting myself. I need to go to the lab today and get blood drawn for the AChR test, it gets sent to Sydney, and I will get the results in one week. At least I may get an idea then if I will need more testing, a neurologist etc.