Dear juliejayne,

Thank you so much for your reply. I'm sorry, though, that you have had similar problems with trying to get a diagnosis. It's good that you've been able to get enough Mestinon somehow to increase the dosage as needed, but as you say, it's a worry that the symptoms seem to worsen to that you've had to change the dose.

I'm glad that you are breathing better now that the summer weather is going away. We are still having very hot weather here. Today is 41C/107F where I am! We are having a heat wave. It is making all of my symptoms worse. I'll be glad when we get cooler weather again.

Thanks again for writing back to me. Wishing you well from across the miles.

Take care,
Erin