I’m still trying to figure this one out too. My triple phase bone scan showed “No evidence of RSD.” My PM said that means I am “later stage” and past the point where the bone scan would be positive, because they are only positive early in the disease (usually less than a year). A doctor in Italy agreed with that, but he did warn that I should make sure of my diagnosis since I am 10 months duration and he is surprised that my scan would already be negative. I got an email from a different doctor in Italy yesterday, and she said: “The triple phase bone scan is the gold standard to make diagnosis of CPRS, so if it is negative, it's hard to think that you still have CPRS.” Huh? That makes no sense to me. I’m absolutely sure I still have CRPS. And, I really don’t think it is the gold standard.

No doctors I deal with seem to agree on how to interpret the test. I guess if it is positive that means something, but a negative test doesn't seem to answer any questions. So frustrating!
Missy