Thank you for your reply.

I don't know if the RSD contributes to mine directly. In the beginning I know it did. Sheets hurt so bad. I don't have as much of that now, but it is not gone by any means. A lot of my dreams focus around things biting my legs or sitting in pricker patches by accident, brushing up on stinging corals while diving or even people trying to chop my legs off, so I know that there is some pain associated while I am asleep that I don't feel as much when I am awake but the sleep Doctor said this does not account for what she sees on my sleep study.

My husband tells me that I move and kick nearly constantly so it suggests RLS but our trial with narcotics says this is not the case. Somehow brain activity is involved. I wonder if our RSD contributes to lighting up certain parts of our brains or if the pain alone can do that? When I'm awake I'm really good at lying to myself and saying that pain isn't there. Maybe that gets thrown out the window when you're asleep because the unconscious takes over?

I know for sure there are other RSD/CRPS folks out there who sleep terribly just from the disease itself. How could we not sleep terribly? I also wonder what other diseases or conditions could manifest as disorders because of RSD. RSD/CRPS seem to cause so many issues outside the scope of the disease.