Member
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Join Date: Jun 2015
Posts: 630
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Member
Join Date: Jun 2015
Posts: 630
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Theo,
I was sleeping in spurts day and night. No position was truly comfortable, but I would get exhausted enough to fall into a coma like sleep throughout the day from which I could not be awakened.
I used a folding stool to keep the covers off my feet. It also forced my feet to stay upright, because they were trapped under the stool. I know it sounds weird, but it helped with the pain.
Neurotin also helped. I was often awakened in the night by jabbing electrical pain, as if there was a thunder storm in my legs and feet. I recall lots of screaming. (I experienced this the other night for the first time in a long time and it was short, but still horrible) I have giant allover body spasms and big twitches when I am falling asleep.
Heating pads helped me calm down my legs. If my RSD leg got too cold I could not sleep and I would moan and groan. I put the heating pad next to my feet under the stool. I know taking a heating pad to bed is not recommended, but I did not know what else to do.
If my husband couldn't massage the bottoms of my feet I used an infared massager. I still do. I think it helps.
I cannot abide the sound of an air conditioner or a fan, but I know I sleep better when there is a breeze.
Like Enna I sleep warm, even in the summer.
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