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Old 09-15-2015, 01:54 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
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Quote:
Originally Posted by en bloc View Post
What is FNE?

If the rheumy is checking for APS, then he should check for the more common test of aCl (anticardiolipin antibody) as well as the Lupus anticoagulant. Both can indicate APS. And yes, this would be a good thing to check if you are having anything similar to TIA's...just to rule out any clotting issues.
Sorry - wrote this when I was half asleep Enbloc. Functional Neurological Episodes. Except I'm sure he said Dysfunctional - which would make far more sense. I assumed FNE would be a known quantity as an abbreviation on this site/ forum but obviously not! I suspect it's just another one of those things, like idiopathic or Fibromyalgia - where doctors can't admit that they don't know enough so they find catch terms to dismiss.

I do have borderline Athlerosclerosis - which killed both my parents suddenly and prematurely - and my cholesterol is raised - despite the fact I eat like a model of virtue - so I'm very glad I now have the most thorough rheumy I could possibly wish for. I'm confident that he's leaving no stone unturned. He probably took the other test for Hughes/APS - I believe there are three in total and it's possible that I've had the other two as he has all my records.

I'm hoping something comes up to at last reveal why I have this small fiber neuropathy that isn't at last. It plays havoc with my mind as I keep thinking I must have severe hypochondria and be imagining the burning pain and the cold wet legs and the soreness in the front of my teeth, guns and nose. I've at last dropped down to 2.5mg Prednisolone now. He did an ultrasound of the joints on my hands and nothing showed up which he says will be because the steroid is still masking/ preventing inflammation but I told him I want to come right off to make sure this is the case. I'm really not sure it's my joints where the inflammation is the problem now and if it comes back as RA then I'd prefer this to be addressed properly than to be on steroids for the rest of my days. I've put on weight on them and my face is all round and I hate this feeling of masking. I'll be off it by Christmas and see him again in January. Mat x
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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