Thanks for the responses!

I'm glad Gabapentin and Topamax work so well for you guys. I was put on Gabapentin at really high doses (9000mg/day or something stupid high) along with Topamax in high doses at the same time. It fried my brain so badly that I had to drop out of school. I couldn't think. I couldn't learn new information and I couldn't even read a page in my books without, #1 - falling asleep and #2 - having to reread over and over again and I couldn't tell you what I had just read. It was like there was a hole in my brain and my thoughts were just falling out. It took years to recover. Even after I complained extensively my Doctor kept me on it until I had a collection of Doctors who had told me that both of these meds cause the type of neurological issues that I was experiencing. I went for months on them with what I felt was no brain function. It was like I had alzheimers. I was not employed at the time due to RSD issues but I couldn't even function to cook dinner. I would forget what I was doing. Years later I think my brain is still slow, maybe 90% recovered, but I'm not the same. That's a lot of words to say, those meds will not work for me, unfortunately. So many Doctors want to give them to me but I just can't go down that path again. I felt dead inside and that's worse than RSD, at least by a little. I'm glad they work for you guys - I wouldn't take them both together or at the doses I was at as a precautionary but I do appreciate the suggestions.

I found this device: http://myrelaxis.com/ and I'm torn on it. It would work for RLS right when you fall asleep, but it shuts off. The other part is that I can't imagine vibrations on RSD legs. OUCH! But I do wonder about it interrupting nerve pain issues. The trial only costs you $50 after the rebate so it's not a huge loss if it doesn't work.

I tried turning the AC up super high last night and snuggling under a blanket. I ended up too warm anyway so I may just have to wait for cold weather for that theory. Seems like RSD is heat sensitive no matter what.

I also have no circulation. I can be under a pile of covers and a heating pad for an hour and my legs are still ice cubes if people touch them. The other interesting thing - I can't sense temperature with my arms or legs so I don't know if I'm cold or hot. I got frostbite in my toes once because of this. I had no idea they were even cold! Boiling water or touching pans in the oven do not register for me either. I usually have burns on at least one hand at any given moment. So the temperature thing makes sense for me somehow with sleep, I am almost always cold, but I hate being hot and I get hot when I'm asleep. I still think there is something there about regulating the temperature.

I tried making blanket stands to keep sheets off of my legs in the beginning but I always kicked them down, usually with quite a bit of pain. I don't cover my legs now when I sleep unless it's super cold so nothing touches them.

I love all of the ideas. I think we'll find something neurologically in the end but I know the sleep Doctor doesn't understand RSD so if the link is there, I'll have to find it. Thanks for the help so far.