Quote:
Originally Posted by franklin76
Hi all,
It has been awhile since I have written here as I was trying to disconnect and enjoy the summer the best I could and try and ignore my idiopathic sfn. My SFN symptoms persist unfortunately. I just got back from the audiologist as several months after my onset in April, I started having persistent tinnitus. The results came back that I have some minor hearing loss which they likened to be consistent with someone who has been exposed to loud noise (construction, military, music) and that is the cause of the tinnitus and I should expect to have the ringing for the rest of my life.
I am not exposed to loud sounds so I suspect this is clearly related to what has been causing my general pn but it is frightening to think that at 39 yrs old this thing is causing permanent damage that is progressing throughout my body. Has anyone else experienced this? Whats next the eyes? I already feel pangs of pain on my tongue and scalp. I am at a loss as to who to turn to. Any ideas? The ENT will point to the neurologist and the neurologist will say they cant find a cause but meanwhile I just live in fear and pain with everyday being an adventure.
|
Is the rest of your SFN worse or has it stayed the same?
I had terrible tinnitus and fluttering sounds in my ears for a long time. I still have it, but it is much more infrequent, mild and no longer a big problem. I was told the same thing. Go to an ENT. I also had vestibular nerve problems that settled down. I would be sick and dizzy if I went to a loud restaurant.
Sorry
I know how crappy it is. I'm glad no one told me to expect to have that for the rest of my life. It was so disturbing. It was worse especially in the morning. Between the pain, numb parts and sounds in my ears that weren't there- I don't know what was worse. Hopefully yours will fade as mine did.