Originally Posted by heb1212

Indigo .... I truly understand your pain. I live with it too. I never knew anything like this existed before it hit me four years ago. I don't want to wake up either, but the option is just as undesireable. A suggestion is to ask for an RX for Ambien so you can at least find sleep and peace for 6-7 hours every day, as I do. It helps when you need strength to face another day. Without going through your other posts I don't know what pain RXs you've tried, but finding one to even take the edge off is necessary. I'm so sorry for what you're going through.